TED Community Organization Presents:

CONNECTED 2026 MINI-SUMMITS

Taking place November 10–15, 2025, CONNECTED 2025 is designed to support patients in finding their way from diagnosis to “NED” (No Evidence of Disease) through science, story, and solidarity.

Announcing the CONNECTED 2026 Mini-Summit: Not My Face!

Join us on the Journey from TED to NED
We Are Rewriting Our Story. Reclaiming Our Lives.

ThyroidEyeDisease (TED) changes more than just your vision, it can deeply impact how you see yourself, how others see you, and how you move through the world…

If you or a loved one has felt the profound physical and emotional shifts of living with TED, YOU ARE NOT ALONE… YOUR STORY MATTERS!

DATE: Monday June 29, 2026
TIME: 4-6 PM US PT, (7-9 PM US ET)
WHERE: Virtual (Hosted via ZOOM by our partners at LeapCure)

Register here: https://forms.gle/ouZvoEtgvk9HkUAz5

Thank you for supporting our work on behalf of all those affected by thyroid eye disease!

Amgen formerly Horizon Therapeutics
Argenx - Reaching Patients Through Immunology Innovation
Viridian Therapeutics
Sling Therapeutics’ convenient oral small molecule linsitinib is in a Phase 2b trial for thyroid eye disease (TED).
Genentech
KRIYA We are a biopharmaceutical gene therapy company developing life-changing gene therapies for conditions affecting millions of people around the world. Our mission is to make gene therapies accessible – not just for the few – but for the many.
Prevent Blindness Organization
Fighting Blindness
 NORD – National Organization for Rare Disorders
The Assistance Fund
Alliance for Patient Access
Thyroid Federation International

A special thanks to Leapcure for hosting the platform for CONNECTED 2026.
leapcure logo

How to connect with the TED Community Organization:

Visit our website: https://tedcommunity.org

Send us an email: hello@tedcommunity.org

Sign up for our eNewsletter mailing list.

Volunteer to join us in the building of the TED Community Organization.

Support the TED Community Organization with a financial contribution.

TED Community Organization

We Educate
We Support
We Connect
All those affected by Thyroid Eye Disease (TED)

You’ll never walk alone.

ted community foundation - thyroid eye disease non profit