Thyroid Eye Disease (TED) & Graves’ Disease Online Support Groups
Join a supportive and informative online community for individuals dealing with thyroid eye disease and/or Graves’ disease. TED Online Support Groups provide a safe space for you to participate in a conversation about what you and others are going through as each navigates the TED journey. These one hour, peer-facilitated, and topic driven online groups use Zoom to connect our global community. You can choose to have your camera off or on. Come as you are. And wear sunglasses if that works best for you. You can simply listen in or share according to your comfort level.
To attend a TED Online Support Group, please fill out the form below to be added to our email list. We will keep you informed about future meet ups.
Because we are a community and not medical professionals, it is important to follow the guidelines of TED Online Support Groups as outlined below – click the plus sign.
The above TED eyes drawing is by Roseanne and is part of the INSIDE OUT TED ART project.
TED Online Peer Support — LET’S DO THIS TOGETHER
Wednesday, October 14, 2026
2:30–3:30 PM PT | 5:30–6:30 PM ET
One Hour • Online • Free
Scroll down and use the red button to access the ZOOM log in credentials.
Living with thyroid eye disease can sometimes feel like encountering one wall after another — fear of what might happen next, changes in our vision, uncertainty about treatment, questions we don’t know how to answer, and the challenge of simply navigating everyday life.
But we don’t have to navigate any of it alone.
Please join us for our October TED Community Support Group — an hour of conversation, shared experience, practical ideas, and connection with people who understand.
CRASHING THROUGH WALLS OF FEAR — Between TED & NED
Led by Christine
Fear can build walls around us — especially when we’re dealing with a disease that can affect how we see, how we look, and how we move through the world.
What are some of the walls TED has put in your way? And how have you gotten through them?
We’ll talk about moving from TED to NED — No Evidence of Disease — while recognizing that becoming NED doesn’t necessarily mean every worry or challenge immediately disappears. How do we keep fear from defining what comes next? How do we reclaim the parts of life that TED may have interrupted?
Let’s share the things that have helped us keep moving forward — sometimes one small step at a time.
ASK YOUR QUESTION!
Led by Chesna
As we learn to live with thyroid eye disease, many questions arise along the way — and each of us is at a different place in our journey.
What have you been wondering about?
Maybe you’re newly diagnosed. Maybe you’re considering treatment or surgery. Perhaps you’re dealing with a symptom you’ve never experienced before, or wondering whether someone else has faced the same challenge.
This is your opportunity to ask the group.
Helping one another through shared experience is at the heart of our community. We may not have all the answers, but there’s a good chance someone in the room will understand the question.
Bring the question you’ve been wanting to ask.
WHEN ONE BECOMES TWO
Navigating Everyday Life with Double Vision
Led by Susan
Double vision can affect far more than eyesight. Driving, reading, walking, working on a computer, going up and down stairs, shopping, exercising, or simply moving confidently through the day can suddenly become more complicated.
Susan will lead a conversation about the real-life experience of living with TED-related double vision.
How have others adapted? What practical strategies have helped? What has been frustrating? And how do we maintain independence and confidence while navigating a world that suddenly doesn’t look quite the way it used to?
If you experience double vision, come share what you’ve learned — or simply come listen to others who understand.
COME AS YOU ARE
You don’t need to prepare anything. You don’t have to have an answer. And you never have to speak unless you want to.
Bring your experiences.
Bring your questions.
Bring whatever is on your mind.
We are better at this together.
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Facilitators:
Chesna Duffy Adams
Chesna is an avid nature lover who spends more time than she cares to admit birding. She was diagnosed with thyroid cancer and Graves’ in 2013 and experienced little to no symptoms for over 10 years following a total thyroidectomy. After a Graves’ flare in early 2024, she was diagnosed with TED. Feeling scared and alone, she happened upon the TED Community Organization’s website, where she found understanding, community, and hope. Now, she wants to offer that same sense of support and safety to others living with TED.
Christine Gustafson
Christine Gustafson is the Founder, CEO, and Executive Director of the TED Community Organization, a global nonprofit dedicated to supporting those living with thyroid eye disease (TED). An “accidental leader,” Christine stepped into advocacy by simply trying to help fellow patients navigate the isolating and often overwhelming TED journey. Today, she leads an organization that is uniting patients, physicians, advocacy groups, and industry partners worldwide to foster education, support, and connection.
Susan Roberts, Pharm.D.
Dr. Roberts is a pharmacist living in Maine. She has worked in community pharmacy in Oklahoma and Maine, and worked during the pandemic administering vaccines to nursing homes and long-term care facilities. Diagnosed with TED in 2018, she struggled with symptoms and the search to find high quality disease information. The TED Community has filled that gap. She is delighted to help other patients along their journeys through monthly support groups and/or individual meetings.