Thyroid Eye Disease (TED) Online Support Groups
Join a supportive and informative online community for individuals dealing with thyroid eye disease. TED Online Support Groups provide a safe space for you to participate in a conversation about what you and others are going through as each navigates the TED journey. These one hour, peer-facilitated, and topic driven online groups use Zoom to connect our global community. You can choose to have your camera off or on. Come as you are. And wear sunglasses if that works best for you. You can simply listen in or share according to your comfort level.
To attend a TED Online Support Group, please fill out the form below to be added to our email list. We will keep you informed about future meet ups.
Because we are a community and not medical professionals, it is important to follow the guidelines of TED Online Support Groups as outlined below – click the plus sign.
The above TED eyes drawing is by Roseanne and is part of the INSIDE OUT TED ART project.
TED Online Peer Support – Join the Conversation
Wednesday, June 18th @ 4:30pm PT / 5:30 MT / 6:30pm CT / 7:30pm ET
Monday, June 23rd @ 12 Noon PT / 1pm MT / 2pm CT / 3pm ET
Please join us for a TED Community Peer Support Meet Up – a heartfelt, uplifting, and solution-oriented conversation about living with thyroid eye disease, TED.
Below are the topics for the midday and evening one-hour meetings that will take place on Zoom in June 2025. (International participants welcomed!)
You can be on or off camera. This is a safe space so make yourself comfortable!
Scroll down and use the red button to access the ZOOM log in credentials.
Have a topic you want to discuss? Let us know: hello@tedcommunity.org
TOPICS
A Loner Named TED
Regardless of how outgoing or well connected each of us are, when TED appears, most of us isolate. The single most common reason is the embarrassment or shame one feels when our eyes become red, swollen, eyelid retraction and for some, a bulging type of stare. Yet being a loner with TED can make the condition worse for a number of reasons. Let’s talk about psychosocial problems and solutions.
Feeling misunderstood? You’re not alone.
When you try to explain what it’s like to live with TED, you may find that others “just don’t get it.” Even well-meaning friends, coworkers, and loved ones may struggle to fully grasp why TED affects your daily life so deeply. In this session, we’ll explore helpful ways to communicate your experience and share “best practices” for helping others better understand your TED journey.
Treatment options – the good and the bad!
Let’s talk about treatment methods we have tried. What are the highs, the lows, and what have you learned along the way. We are continuing the conversation from last month as there is great value in one TED patient sharing with another what has worked and not worked for each individual.
Navigating Graves’ Disease & TED
Most of us in the TED Community have both Graves’ and TED. Graves’ disease is an autoimmune disorder that leads to an overactive thyroid gland, a condition known as hyperthyroidism. Common symptoms include anxiety, weight loss, rapid heartbeat, and bulging eyes. While Graves’ and TED are considered two separate autoimmune diseases, we have found that navigating both successfully requires education, support, and collaboration with others on the same journey.