Thyroid Eye Disease (TED) Online Support Groups

Join a supportive and informative online community for individuals dealing with thyroid eye disease. TED Online Support Groups provide a safe space for you to participate in a conversation about what you and others are going through as each navigates the TED journey. These one hour, peer-facilitated, and topic driven online groups use Zoom to connect our global community. You can choose to have your camera off or on. Come as you are. And wear sunglasses if that works best for you. You can simply listen in or share according to your comfort level.

To attend a TED Online Support Group, please fill out the form below to be added to our email list. We will keep you informed about future meet ups.

Because we are a community and not medical professionals, it is important to follow the guidelines of TED Online Support Groups as outlined below – click the plus sign.

The above TED eyes drawing is by Roseanne and is part of the INSIDE OUT TED ART project.

TED Online Support Groups Guidelines

Discussion Guidelines

Stay Positive and Supportive:
Share positive experiences, coping mechanisms, and success stories. Focus on providing constructive support.

Empathy and Respect:
Everyone’s experience with TED is unique, and it’s essential to be supportive and understanding.

Avoid Medical Advice:
The group is not a substitute for professional medical advice. Members should consult their healthcare providers for personalized guidance.

Share Personal Experiences:
Share your personal experiences with TED, including symptoms, treatments, and coping strategies. This helps foster a sense of community and understanding.

Share reliable and up-to-date educational resources about TED:
This can include articles, videos, and reputable websites to empower members with accurate information.

Respect Privacy:
Please respect each other’s privacy. Personal health information should not be shared without consent.

TED Online Peer Support – Join the Conversation

Wednesday, July 17th @ 1pm PST / 3pm CST / 4pm EST
Wednesday, July 24th @ 4:30pm PST / 6:30pm CST / 7:30pm EST

Please join us for a TED Community Peer Support Meet Up – a heartfelt, uplifting, and solution-oriented conversation about living with thyroid eye disease, TED.

Below are the topics for the one-hour meeting that will take place on Zoom in July. (International participants welcomed!)

You can be on or off camera. This is a safe space so make yourself comfortable!

Fill in the form on this page to receive the Zoom log in credentials.

TOPICS

Highs & Lows
Let’s take a moment to check in with one high and one low that you are currently experiencing.

Graves’ Disease
July is Graves’ Disease Awareness Month. Most of us with TED have also been diagnosed with Graves. While we may have similar symptoms, our experience with Graves seems to be highly individual. What can you share from your own journey with Graves that might help others with a similar diagnosis?

The YOU No One Sees
Cynthia calls this her “Cover Book” which means her experience of TED that lives within her and is never shown to the outside world. Do you have an inner TED story that is different than how you present yourself to those around you?

NED instead of TED
Some of us dream of a day when we can experience NED instead of TED. NED = No Evidence of Disease! Let’s talk about “hope” and the role it plays in your healing journey with TED.

On a final note: Connection :o)