Thyroid Eye Disease (TED) Online Support Groups

Join a supportive and informative online community for individuals dealing with thyroid eye disease. TED Online Support Groups provide a safe space for you to participate in a conversation about what you and others are going through as each navigates the TED journey. These one hour, peer-facilitated, and topic driven online groups use Zoom to connect our global community. You can choose to have your camera off or on. Come as you are. And wear sunglasses if that works best for you. You can simply listen in or share according to your comfort level.

To attend a TED Online Support Group, please fill out the form below to be added to our email list. We will keep you informed about future meet ups.

Because we are a community and not medical professionals, it is important to follow the guidelines of TED Online Support Groups as outlined below – click the plus sign.

The above TED eyes drawing is by Roseanne and is part of the INSIDE OUT TED ART project. 

Discussion Guidelines

Stay Positive and Supportive:
Share positive experiences, coping mechanisms, and success stories. Focus on providing constructive support.

Empathy and Respect:
Everyone’s experience with TED is unique, and it’s essential to be supportive and understanding.

Avoid Medical Advice:
The group is not a substitute for professional medical advice. Members should consult their healthcare providers for personalized guidance.

Share Personal Experiences:
Share your personal experiences with TED, including symptoms, treatments, and coping strategies. This helps foster a sense of community and understanding.

Share reliable and up-to-date educational resources about TED:
This can include articles, videos, and reputable websites to empower members with accurate information.

Respect Privacy:
Please respect each other’s privacy. Personal health information should not be shared without consent.

TED Online Peer Support – Join the Conversation

Wednesday, December 11th @ 4:30pm PT / 6:30pm CT / 7:30pm ET
Monday, December 16th @ 12 Noon PT /  2pm CT / 3pm ET

ted builders workshop for thyroid eye disease

Please join us for a TED Community Peer Support Meet Up – a heartfelt, uplifting, and solution-oriented conversation about living with thyroid eye disease, TED.

Below are the topics for the midday and evening one-hour meetings that will take place on Zoom in December. (International participants welcomed! )

You can be on or off camera. This is a safe space so make yourself comfortable! 

Request ZOOM log in credentials: hello@tedcommunity.org

TOPICS

TED Treatments
As most of us know, there is not one clear path for thyroid eye disease (TED) treatment. Physicians prescribe a range of options from steroids to surgery. Some recommend the FDA approved TEPEZZA while others point to Clinical Trials. In mild cases, eye drops, cold or hot compresses, selenium, and elevating the head of your bed may be suggested. How do you know what it right for you? We’re going to talk about it. 

TED & Social Anxiety
Nearly everyone with TED knows what it is to have social anxiety, fear being judged, humiliated, or rejected by others. It is natural to want to “fit in” and be accepted. TED can make this difficult, at best, primarily due to the change in one’s appearance. Let’s share ideas for staying social when one has thyroid eye disease.

Lifestyle Choices – Top 7 Recommendations from AI
We asked AI about the importance of lifestyle choices when it comes to TED. You might be surprised by what AI has to say on this topic! We’ll share a worksheet that lists the “Top 7” lifestyle choices you can make to ease your journey with thyroid eye disease.

On a final note: The Holidays!

To participate in TED Online Support Groups, please fill out the form below and submit.

Please let us know what you would like to gain by attending TED Online Support Groups.
This program is made possible by the extensive work done by TED patients: Cynthia B. and Susan R.