TED Community Organization
For all affected by Thyroid Eye Disease & Graves’ Disease
The TED Community Organization is the first and only 501c3 worldwide nonprofit dedicated solely to people living with thyroid eye disease (TED). Founded and led by patients, the organization provides trusted information, emotional support, and community connection. Through innovative programs and global collaborations, the TED Community is transforming what it means to live with TED – empowering patients to take an active role in their healing journey.
Our vision is a world where no one walks alone through the arduous and often isolating journey of thyroid eye disease. We provide compassionate support, trusted information, and meaningful programs for all those affected by TED.
The TED Community Organization thrives because of the support of medical and scientific professionals, industry partners developing solutions for thyroid eye disease, and allied organizations that guide our steps and elevate the voices of TED patients. At our core, we are an international community of individuals supporting one another on the journey from TED to NED.
*NED: no evidence of disease
TED Community Organization Presents: TED AWARENESS WEEK 2026
Join us for a weeklong conversation about Whole-Person Care
Patients • Care Partners • Physicians • Advocates • Industry & Community Partners: Everyone Welcome ~ Every Night!
What Is Whole-Person Care?
For people living with Thyroid Eye Disease (TED) and Graves’ disease, it means looking beyond medical treatment to discover how everyday choices can support our physical, emotional, and social wellbeing. This includes anti-inflammatory nutrition, movement as medicine, stress reduction, restorative sleep, emotional and social wellbeing, a healthy environment, and positive self-talk.
Whole-Person Care complements medical treatment by empowering us to take an active role in our health and healing journey. Through small, sustainable lifestyle changes, we can build resilience, improve quality of life, and rediscover a greater sense of control over our lives.
Learn more about this innovative program during TED Awareness Week!
IMPORTANT ADVANCES IN TED TREATMENT!
There are now THREE FDA-Approved Treatments for Thyroid Eye Disease (TED):
TEPEZZA, LUMVOA, and ENSPRYNG.
Please see the recently announced information about the FDA-Approval of LUMVOA, from Viridian Therapeutics.
And the October 15th FDA-Approval of ENSPRYNG from Genentech, a member of the Roche Group.
Dr. Raymond Douglas – Hope for TED Patients
Want to rewrite your story? Here’s how!
TED COMMUNITY ORGANIZATION MEMBERSHIPS
Thyroid Eye Disease (TED) Common Symptoms
Light Sensitivity
Watery Eyes
Gritty Eyes
Red Eyes
Bulging Puffy Eyes
Double Vision
Graphics and fact sheet courtesy of Prevent Blindness.
Spotlight on Graves’ Disease
What is Graves’ disease? All about ‘The Boys’ star Erin Moriarty’s diagnosis
It’s chronic autoimmune disorder that hijacks your thyroid gland, sending it into overdrive and flooding your body with more hormones than it needs, according to the National Institutes of Health.
Early signs often include heat intolerance, increased appetite, difficulty sleeping, fatigue and nervousness, anxiety or irritability, according to the Mayo Clinic.
About 40% of people with Graves’ disease also have TED. Approximately 90% of people with Thyroid Eye Disease (TED) also have Graves’ disease. While Graves’ disease is the most common cause of TED, it can also occur in individuals with other thyroid conditions or even with normal thyroid function according to the American Thyroid Association.
American Academy of Ophthalmology defines Thyroid Eye Disease (TED)
Thyroid eye disease (TED) is an autoimmune disease caused by the activation of orbital fibroblasts by autoantibodies directed against thyroid receptors. TED is a rare disease, which had an incidence rate of approximately 19 in 100,000 people per year in one study. The disorder characterized by enlargement of the extraocular muscles, fatty and connective tissue volume. Graves’ disease (GD) is an autoimmune disorder involving the thyroid gland, typically characterized by the presence of circulating autoantibodies that bind to and stimulate the thyroid hormone receptor (TSHR), resulting in hyperthyroidism and goiter. Organs other than the thyroid can also be affected, leading to the extrathyroidal (outside the thyroid gland itself) manifestations of GD. TED is observed in ~ 50% of patients while Graves’ dermopathy and acropachy are quite rare. TED was previously known as thyroid-associated ophthalmopathy (TAO), Graves orbitopathy (GO) and other variations.
Learn more about Thyroid Eye Disease (TED)
Portraits of Life with Thyroid Eye Disease
Navigating Thyroid Eye Disease
Prevent Blindness & TED Community
Celebrate TED Awareness Week 2025
Thank you for supporting our work on behalf of all those affected by thyroid eye disease!
How to connect with the TED Community Organization:
Visit our website: https://tedcommunity.org
Send us an email: hello@tedcommunity.org
Sign up for our eNewsletter mailing list.
Volunteer to join us in the building of the TED Community Organization.
Support the TED Community Organization with a financial contribution.
TED Community Organization
We Educate
We Support
We Connect
All those affected by Thyroid Eye Disease (TED)
You’ll never walk alone.
