TED Community Organization Presents:

CONNECTED 2025

Taking place November 10–15, 2025, CONNECTED 2025 is designed to support patients in finding their way from diagnosis to “NED” (No Evidence of Disease) through science, story, and solidarity.

TED AWARENESS WEEK 2025

Join us on the Journey from TED to NED
We Are Rewriting Our Story. Reclaiming Our Lives.

CONNECTED 2025 is the first global virtual conference created by and for people impacted by Thyroid Eye Disease (TED). Hosted by the TED Community Organization—the only 501(c)(3) nonprofit solely focused on TED—this immersive, weeklong event brings together patients, caregivers, medical experts, advocacy leaders, and industry partners for six days of education, empowerment, and connection. 

Each evening presented two one-hour sessions, November 10–15, 2025, CONNECTED 2025 is designed to support patients in finding their way from diagnosis to “NED” (No Evidence of Disease) through science, story, and solidarity.

Why It Matters

TED is a disfiguring, painful, and life-disrupting autoimmune condition. But too often, the patient journey is defined by fear, isolation, and uncertainty. CONNECTED 2025 is changing that.

This event reclaims the TED narrative—shifting it from one of helplessness to one of agency, education, and healing. With a rich lineup of expert-led sessions, lived experience panels, and community-building spaces, CONNECTED 2025 helps patients take their lives back and support others along the way.

Missed the CONNECTED 2025 Event?

No problem! We have the videos of each session. Use the buttons below or the CONNECTED drop down menu on each page to access the videos from each evening, Monday through Thursday.

Thank you for supporting our work on behalf of all those affected by thyroid eye disease!

Amgen formerly Horizon Therapeutics
Argenx - Reaching Patients Through Immunology Innovation
Viridian Therapeutics
Immunovant
Tourmaline Bio
Genentech
KRIYA We are a biopharmaceutical gene therapy company developing life-changing gene therapies for conditions affecting millions of people around the world. Our mission is to make gene therapies accessible – not just for the few – but for the many.
Sling Therapeutics’ convenient oral small molecule linsitinib is in a Phase 2b trial for thyroid eye disease (TED).
Prevent Blindness Organization
Fighting Blindness
The Assistance Fund
Alliance for Patient Access

A special thanks to Leapcure for hosting the platform for CONNECTED 2025.
leapcure logo

How to connect with the TED Community Organization:

Visit our website: https://tedcommunity.org

Send us an email: hello@tedcommunity.org

Sign up for our eNewsletter mailing list.

Volunteer to join us in the building of the TED Community Organization.

Support the TED Community Organization with a financial contribution.

TED Community Organization

We Educate
We Support
We Connect
All those affected by Thyroid Eye Disease (TED)

You’ll never walk alone.

ted community foundation - thyroid eye disease non profit