TED Community Storytelling Workshop

Many people living with Thyroid Eye Disease (TED) and Graves’ Disease feel a quiet desire to tell their story — but also uncertainty about how, when, or whether it’s right for them.

The TED Community Storytelling Workshop was created to offer support, preparation, and choice in a safe, respectful, and non-pressured environment.

This free, virtual workshop is open to TED Community members worldwide and is designed to help you explore your lived experience — whether you ultimately choose to share it publicly or keep it just for yourself.

PARTICIPATE IN YOUR OWN HEALING JOURNEY

What This Workshop Is

This is a gentle, trauma-informed storytelling preparation workshop, not a requirement or audition.

Together, we’ll explore:

• Making sense of your TED journey in your own words
• Communicating your experience with clarity and confidence
• Understanding different storytelling formats (written, conversation, video, panels)
• Creative expression through art — because not all stories are best told with words

You are always in control of what you share, how much you share, and whether you share at all.

Workshop Format

• 4 virtual evening sessions (1 hour each)
• Light pre-work before each session (30–60 minutes)
• Fully virtual
• No cost to participate

Workshops are offered twice per year (spring and fall).

After the Workshop

Participants who complete all four sessions will:

• Receive a Certificate of Completion
• Be invited into an inner circle of future storytelling opportunities, such as:
o Interviews
o Focus groups
o Webinars
o Educational videos
o Media or advocacy requests

Participation in any future opportunity is always optional and consent-based.

Participants may also choose to:

• Share their story anonymously on the TED Community website
• Or collaborate on a video for the TED Community YouTube channel

International Participation

• TED Community members outside the U.S. are welcome
• If time zones make live attendance difficult, alternative options may be available
• If interest from outside the U.S. is strong, we will schedule a Europe-friendly session

Important to Know

• There is no cost
• There is no obligation to share your story publicly
• This workshop is not affiliated with any specific treatment or product
• You may withdraw at any time

If you feel even a small nudge of curiosity, you are welcome here.

TED Community Storytelling Workshop 2026 for thyroid eye disease and graves' disease patients

Register below to express your interest.

We will follow up with Spring & Fall workshop dates, session times, and next steps.

U.S. + International TED Patients Welcomed!
TED Community support and partnerships