Thyroid Eye Disease (TED) Online Support Groups
Join a supportive and informative online community for individuals dealing with thyroid eye disease. TED Online Support Groups provide a safe space for you to participate in a conversation about what you and others are going through as each navigates the TED journey. These one hour, peer-facilitated, and topic driven online groups use Zoom to connect our global community. You can choose to have your camera off or on. Come as you are. And wear sunglasses if that works best for you. You can simply listen in or share according to your comfort level.
To attend a TED Online Support Group, please fill out the form below to be added to our email list. We will keep you informed about future meet ups.
Because we are a community and not medical professionals, it is important to follow the guidelines of TED Online Support Groups as outlined below – click the plus sign.
The above TED eyes drawing is by Roseanne and is part of the INSIDE OUT TED ART project.
TED Online Peer Support – Join the Conversation
Wednesday, February 19th @ 4:30pm PT / 5:30 MT / 6:30pm CT / 7:30pm ET
Friday, February 28th @ 12 Noon PT / 1pm MT / 2pm CT / 3pm ET
Please join us for a TED Community Peer Support Meet Up – a heartfelt, uplifting, and solution-oriented conversation about living with thyroid eye disease, TED.
Below are the topics for the midday and evening one-hour meetings that will take place on Zoom in February 2025. (International participants welcomed!)
You can be on or off camera. This is a safe space so make yourself comfortable!
Scroll down and use the red button to access the ZOOM log in credentials.
Have a topic you want to discuss? Let us know: hello@tedcommunity.org
TOPICS
Reasons for HOPE
Confusion, despair and loneliness are common with TED. What do you hold onto when on the TED Journey in terms of hope?
When TED Returns
Let’s talk about how to deal with a reoccurrence of TED. This can happen when a treatment has worn off or are a long term TED patient dealing with relapse. When symptoms suddenly flare, what strategies do you have to deal with the mental and physical effects of facing additional treatment? And how to face making those decisions regarding treatment.
Self-Talk
Pausing a moment and listening to the self-talk regarding TED can be enlightening! As Grace, a TED patient, shared with us: “I was hating on myself!” Is this your experience as well? Or have you been able to turn this around to ensure the “voice in your head” is compassionate and solution oriented? Were going to talk about it.
Medication and Side Effects
With any medication, there are side effects. Some not too difficult to deal with. Others can be so daunting that you may turn away from particular treatments to avoid causing potential long-term trouble for yourself. What is the best way to navigate medications and side effects? Let’s provide some light on this subject by sharing our experiences.
On a final note: Who do you turn to for support?