Thyroid Eye Disease (TED) Online Support Groups

Join a supportive and informative online community for individuals dealing with thyroid eye disease. TED Online Support Groups provide a safe space for you to participate in a conversation about what you and others are going through as each navigates the TED journey. These one hour, peer-facilitated, and topic driven online groups use Zoom to connect our global community. You can choose to have your camera off or on. Come as you are. And wear sunglasses if that works best for you. You can simply listen in or share according to your comfort level.

To attend a TED Online Support Group, please fill out the form below to be added to our email list. We will keep you informed about future meet ups.

Because we are a community and not medical professionals, it is important to follow the guidelines of TED Online Support Groups as outlined below – click the plus sign.

The above TED eyes drawing is by Roseanne and is part of the INSIDE OUT TED ART project. 

Discussion Guidelines

Stay Positive and Supportive:
Share positive experiences, coping mechanisms, and success stories. Focus on providing constructive support.

Empathy and Respect:
Everyone’s experience with TED is unique, and it’s essential to be supportive and understanding.

Avoid Medical Advice:
The group is not a substitute for professional medical advice. Members should consult their healthcare providers for personalized guidance.

Share Personal Experiences:
Share your personal experiences with TED, including symptoms, treatments, and coping strategies. This helps foster a sense of community and understanding.

Share reliable and up-to-date educational resources about TED:
This can include articles, videos, and reputable websites to empower members with accurate information.

Respect Privacy:
Please respect each other’s privacy. Personal health information should not be shared without consent.

TED Online Peer Support – Join the Conversation

Wednesday, October 23rd @ 4:30pm PST / 6:30pm CST / 7:30pm EST
Wednesday, October 30th @ 12 Noon PST /  2pm CST / 3pm EST

ted builders workshop for thyroid eye disease

Please join us for a TED Community Peer Support Meet Up – a heartfelt, uplifting, and solution-oriented conversation about living with thyroid eye disease, TED.

Below are the topics for the midday and evening one-hour meetings that will take place on Zoom in October. (International participants welcomed! )

You can be on or off camera. This is a safe space so make yourself comfortable! 

Request ZOOM log in credentials: hello@tedcommunity.org

TOPICS

Picking a Path
Because thyroid eye disease (TED) can change our appearance, and not in the best ways, you may find yourself facing a decision of two paths. One is to isolate, shut down your social life, cut back on work relationships, and you may even withdraw from family. The other path, which is equally difficult, is to try to live as normally as possible while navigating the sizable challenges presented by TED. Let’s talk about the path that works best for each of us. 

Dealing with anxiety and depression due to TED
It is very common to take a deep dive into some scary and sad places when on the super challenging TED journey. Learn how others are similarly affected by TED. And let’s share ideas for weathering these emotional storms.

Lifestyle Choices – Do they really matter?
We asked AI about the importance of lifestyle choices when it comes to TED. You might be surprised by what AI has to say on this topic! More importantly, how much weight do you give your day to day choices in terms of helping yourself through the difficulties of TED?

On a final note: Sunglasses!

To participate in TED Online Support Groups, please fill out the form below and submit.

Please let us know what you would like to gain by attending TED Online Support Groups.
This program is made possible by the extensive work done by TED patients: Cynthia B. and Susan R.