Thyroid Eye Disease (TED) Online Support Groups
Join a supportive and informative online community for individuals dealing with thyroid eye disease. TED Online Support Groups provide a safe space for you to participate in a conversation about what you and others are going through as each navigates the TED journey. These one hour, peer-facilitated, and topic driven online groups use Zoom to connect our global community. You can choose to have your camera off or on. Come as you are. And wear sunglasses if that works best for you. You can simply listen in or share according to your comfort level.
To attend a TED Online Support Group, please fill out the form below to be added to our email list. We will keep you informed about future meet ups.
Because we are a community and not medical professionals, it is important to follow the guidelines of TED Online Support Groups as outlined below – click the plus sign.
The above TED eyes drawing is by Roseanne and is part of the INSIDE OUT TED ART project.
TED Online Peer Support – Join the Conversation
Wednesday, March 19th @ 4:30pm PT / 5:30 MT / 6:30pm CT / 7:30pm ET
Friday, March 28th @ 12 Noon PT / 1pm MT / 2pm CT / 3pm ET
Please join us for a TED Community Peer Support Meet Up – a heartfelt, uplifting, and solution-oriented conversation about living with thyroid eye disease, TED.
Below are the topics for the midday and evening one-hour meetings that will take place on Zoom in March 2025. (International participants welcomed!)
You can be on or off camera. This is a safe space so make yourself comfortable!
Scroll down and use the red button to access the ZOOM log in credentials.
Have a topic you want to discuss? Let us know: hello@tedcommunity.org
TOPICS
The Best & Worst Advice for TED
Friends, family, physicians, Dr. Google, Facebook groups, and your own mind can offer advice on navigating TED. What is the best and the worst advice you have received since your TED diagnosis?
Feeling Alone?
One of the most common feelings when one has thyroid eye disease is the sense of isolation. Many of us pull inward, hiding ourselves from the world around us, not wanting to be seen. Yet suffering greatly from the loneliness. Let’s talk about the natural inclination to withdraw. And the power of community to heal.
The Voice in Your Head!
We started this topic last month and will be continuing this month to tune into the self-talk that surrounds a TED diagnosis. When we don’t have answers, it is easy to let our imaginations run wild! If you have ever projected your worst fears regarding TED into the future, this conversation is for you!
Treatment Options
What are the current treatment options? And how do you select the one that is right for you? Let’s explore treatments that include everything from self-help to the biologics via FDA approved to clinical trials.
Insights from Cynthia: My Cover Book – What is the cover book you use to make you feel comfortable? For instance, my cover book is me showing confidence in what I do even though internally I could be dealing with difficulties. I still show my strength and confidence because that makes me forget about TED and helps me pull through!